Sorry all....it has been waayyyyyy to long! I am updating from our hospital room in Philly. Landon had a repeat MRI, and prolonged EEG done. Thank goodness the MRI was normal. The only abnormality was some subderal hematoas from the prednisone (we won't be using any more steroids after that) and they are healing on their own. The EEG caught some good seizures, and now we know they start out partial and turn to infantile spasms. Thank goodness we are still here because Landon just had his LONGEST seizure...a little over 11 minutes. It seemed forever. We should be leaving tomorrow, as long as everything is going okay. Now Landon is starting depakote and weening Keppra. So hopefully this will be the answer. Still no ideas on a cause.
I'm sure i'm forgetting to update on something, but this is a quick update for now.
Hope all is well with everyone!!
XOXO,
Heather
If you need anything at all just let me know. I am always here to listen if you need to just talk.
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