We are on our 6+ drive to Philadelphia right now. Thank goodness Landon is so good on the drive. It is exhausting considering we are only in Philadelphia about 16 hours...then back in the car for 6+ hour drive home!
Landon has officially been on the diet 3 weeks today! I know it is way to early to know if we have success, but things aren't going as well as they were. He started off awesome! Over the weekend we noticed his normal pattern occurring again. I'm praying that our good spurt wasn't the typical "honeymoon" we see when they change his medicines.
The other frustrating issue is the c diff. He ended his 10 day med yesterday, and I don't think it's gone! He had a massive blowout today, and I haven't seen something like that since we were in the hospital(when he contracted it!). It's just another unnecessary issue for us to deal with. Part of me if upset/mad at someone(I'm not exactly sure who) for not using proper hand hygiene! I have a bad feeling this could be another long battle.
Landon also continues his strike from drinking! I thought a button or g tube was in our future, but the keto team said they wouldn't do that. They feelmthe issue shouldn't last long. They are possibly going to send us to a specialist to see why he isn't drinking. Great, another doctors appointment! Oh well, better safe than sorry I guess!
We are working on staying optomistic and looking forward to seizure/c diff free days!
Prayers for all our friends!
Xoxo,
Heather
On the road again, ugh! Thats great that he is a good traveler though. Hoping for more seizure free days for your little guy and that the c diff will disappear as well. Prayers as always from your Alabama friends :)
ReplyDeleteP.S. Do you think Friday evening would be an okay time to call? Hope to talk to you soon!
Allison
Absolutely!!! I'm looking forward to our much needed chat Friday! Hope your all doing well!
ReplyDelete