Monday, February 7, 2011

Much better days!

Thank god we have our happy little Landon back!!! We took him off the Zonogram which I think was making him fussy, not wanting to eat, and very tired. He is now back on topomax, which never did any of those side effects. This evening Brent got Landon to drink some orange pop! I was pretty amazed! He also took a swig or two of formula, and ate almost a whole jar of baby food! I think we are moving in the right direction.

Tomorrow we will be in Pittsburgh again to see the GI specialist. Today we saw the eye doctor, and she took his stent out, and said his eyes look great!!!!!! Finally, good news! I have decided to take a day at a time, and for my sanity, stop worrying about the unknown. I will deal with Landons issues when we are positive what's going on.

On another good note, Landon hasn't been having his huge clusters. He is now having only short periods of small spasms. It's odd, but we are super happy to not be seeing any partial seizures!

Praying for all our friends!

Sunday, February 6, 2011

My mind won't stop

I haven't been able to post lately. I'm feeling very overwhelmed with everything with Landon lately. I'm not sure if it's the weather or what. We have a very busy week, 2 days in Pittsburgh(eye doctor, and GI specialist) and a trip to Philadelphia. I spoke with our genetic counselor this week, and my mind hasn't stopped yet. I'm not ready to talk about it, and we still aren't sure what to make of it. We will have an appointment very soon as soon as the rest of the results are in. And of course more testing. I really can't help but feel helpless...overwhelmed, and scared. For the first time...I can say I am beyond scared.

Please say extra prayers we get optomistic, good news!

We are thinking and praying for all of our friends.