Thank god we have our happy little Landon back!!! We took him off the Zonogram which I think was making him fussy, not wanting to eat, and very tired. He is now back on topomax, which never did any of those side effects. This evening Brent got Landon to drink some orange pop! I was pretty amazed! He also took a swig or two of formula, and ate almost a whole jar of baby food! I think we are moving in the right direction.
Tomorrow we will be in Pittsburgh again to see the GI specialist. Today we saw the eye doctor, and she took his stent out, and said his eyes look great!!!!!! Finally, good news! I have decided to take a day at a time, and for my sanity, stop worrying about the unknown. I will deal with Landons issues when we are positive what's going on.
On another good note, Landon hasn't been having his huge clusters. He is now having only short periods of small spasms. It's odd, but we are super happy to not be seeing any partial seizures!
Praying for all our friends!
Xoxo,
Heather
Glad you were able to get some good news!!! We are back from Disney...whew what a week!!! I would love to talk to you, any night this week would be fine. Just let me know when is a good time to call or just call me. Talk to you soon!!! (((hugs)))
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