Day what?

So I am posting twice today.  Since my last post was so emotional, I thought I would just create another one to update Landon's progress. 

I don't even know what day we are on anymore.  Landon was re-tested for C-Diff, and big shock, he still is postive.  Duh!  So on to his next round of treatment.  Of course it couldn't be easy.  First off it's $1,000.  Yes I said $1,000.  Thankfully we have wonderful insurance and it was covered! We didn't find out until 4pm that he needed another round of medicine, and of course Philly was gone for the day.  So I spent 2 hours on the phone getting things lined up.  Since he is on the diet, he can only have specific manufactured drugs. I finally got it figured out by 6pm. So we get the medicine, get home, open the capsules...and there is rock looking substance inside?  WHAT? How do I give a child who won't suck anything,  and who can't have the actual capsule(due to the diet) this yucky stuff inside?  I call the pharmacist, and we decide I will try to peel the capsule off and crush the insides.  It was successful, but of course couldn't be easy!  It took 10 minutes to get all the capsule off...geez.

He started his 3.25-1 ration today.  He did great with the food, but still no real success with the bottle.  Although now if you give him the bottle he will hold it!  He even puts it up to his mouth...but no sucking.  If he continues not drinking once the c-diff is cleared up, he will have to see a GI specialist.  He may also need to see a Infectious specialist if this round of medicine doesn't clear up the c-diff.  Just what Landon needs...2 more doctors. 

Seizures have seemed to have faded off since Tuesday...Yeeeaaahhhh!  We hope and pray for more seizure free days!  We also had a great day yesterday, and today.  Landon took a few steps in his walker!!! Something he has never done!  It was a very proud moment!  He surprises me daily with the new things he does.  Brent has taught him to give a high 5.  It's pretty cute...although  I think Landon is more excited to hit him.

I feel like this post is somewhat disorganized...but that's how I feel today. 

Sending prayers to all of our friends! 

Xoxo,
Heather