Tuesday, March 1, 2011

Catch up

I have definitely been slacking on the blogging. I just haven't had the most optimistic days. We went to Philadelphia weeks ago. Brent and I went and my mom watched Landon because the night before we left he got the flu. Lucky him. We went all the way there and decided not to start felbamate, due to some of the skins biopsy coming back "suggestive". So now the waiting game has started for March 24th when we go to genetics again. They said hopefully the remaining testing will be in, and we will decide where to move next. Today Landon has his swallow study done to possibly come up with a reason he stopped drinking. I was actually impressed with how in depth they were, and how well the day flowed. They agreed he is tongue tied...so we go back friday with an appointment with the ENT to talk about surgery. They said it is a good possibility that it is the problem. Yah for that!

Landon has stopped Zonogram and gone back to Topomax since he was miserable on Zonogram. We also started CoQ10, and we think it has helped his energy.

Please say some extra prayers that we get some good news at the end of the month.

Prayers for all our friends!

Xoxo,
Heather

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