Update...

Sooo I have decided that I'm not very good at keeping everyone updated on Landon's progress. I really am trying...:)

Landon had ANOTHER medication increase, but things have been going VERY well since!!! I hate to say it out loud, but we are 2 days seizure free!!! Can things really be going our way?? We are a week away from leaving for Philadelphia...and don't know how long our stay will be. Which means alot of packing. We are excited, and super optomistic to hear what our new doctor thinks about Landon.

Landon has been making lots of progress...I don't see any regression! He is close to sitting alone, rolling to his back from his side, talking away, and laughing up a storm! When he is awake it's hard to have a converstaion around him...not that I'm complaining! He wants everyone to know he is present. When we were in Church yesterday he sang when we sang, and even helped father give the sermon. It was too cute!

I have been staying busy reading a new book about the adverse affects of Pertussis and Rubella Vaccines. Going to libraries to do research, and find anything that will help! I will let you all know if I find anything interesting.

Today, we are seeing the Early Intervention Crew again, to review Landon's evaluation. Hopefully we have therapists coming soon! It is long overdue, and I'm ready for them to start working with him.

Other exciting news is we are having a family come over tomorrow with a daughter who just had brain surgery. I don't now much about the little girl, but I know she had infantile spasms, and they are coming to tell us their story. We are really excited to meet them. Hopefully we will hear something that could help Landon or one of our other friends. If nothing else we will have one more family to add to ours!

We hope all is well with everyone! Keeping everyone in our prayers!

XOXO,
Heather

Late but never...

It's been awhile since our last post, but we have been busy! Landon had a great 1st Easter! The bunny was extra generous with him! Landon seemed to really enjoy seeing his Aunt and Uncles from out of town...who of course spoiled him with gifts as well! It's always nice to have some time to relax with family and friends. It was exactly what I needed!

Landon had his evaluation with early intervention today. Soon we will have OT and PT coming to our house! Hopefully they can get him where he needs to be!

We also have exciting news...We FINALLY have our appointment for Philadelphia!!!! Such a relief!!!! After all the confusion and phone calls it's scheduled! Say a prayer for a safe trip and answers!

Thinking and praying for all of you!
XOXO,
Heather

This Friday

This Friday...March 26th...Is Purple Day! Will you join us by wearing purple...In honor of Landon...and all his seizure friends?!

Click here to learn more about Purple Day and the extraordinary little girl who launched the event.

And the disappointment begins...

I know I shouldn't be shocked that Landon had a big seizure today, but I was secretly getting overjoyed with his good days! It is a constant rollercoaster...and I'm ready to get off! I try to stay optomistic, but moments like this make me scream.

On a positive note the weather is beautiful today and Landon has been extremely happy and playful! I thank god every day for blessing our family with this wonderful little boy, but I also pray we can get these seizures under control. So for now I will continue to enjoy him, pray, and make the never ending phone calls until he is better!

Hope all is well with your family! Prayers continue for all of you!!!

Better days...

I hate to say it out loud, but the last 2 days have been excellent. Maybe the extra prayers from all of our new friends are helping! I try to be happy for the good days, but don't want to be disappointed if/when the seizure begin again. I hope the seizures are gone for good...duh, right? (We all pray for this numerous times a day!)

We still are waiting on Philadelphia. We have decided to stop Landon's immunizations until we find a cause for his seizures. After much discussion, and a conversation with a new family friend, we just can't be sure that they aren't the cause of his seizures. It is extremely scary all the things you hear about them. I was someone who almost didn't believe they could harm someone...so for me to believe it could be a factor is somewhat crazy. But at this point nothing is ruled out, and the more I read, the more I wonder.

Thanks for checking in and all the prayers! We will continue to keep all our new friends and families in our prayers as well!

The waiting game...

I haven't posted anything in a few days because everything is the same. Landon is still having seizures and we are still waiting to get the call from Philadelphia. I did call yesterday to make sure all our paperwork, and scans were sent. (if I don't worry about it, noone else will!) On the up side, we are still being blessed with absolutely beautiful weather! Landon and I have been taking lots of walks enjoying the sun! Also, Landon has been eating pretty well! This makes me happy, because I worry when he doesn't want to eat. So I guess you can say we are just playing the waiting game for now.

Landon's Seizures

This video is of Landon having a seizure in December 2009. They don't look exactly like this now, but this is the second type he had. They have changed quite a few times over the last 4 months.