2nd Philly Trip

So we have returned from Philadelphia again. We had a routine EEG done before the appointment. At the appointment our doctor informed us, Landon now has developed pre-hypsarrhythmia. Meaning he has hypsarrhythmia, but it isn't full blown yet. His EEG has worsened, but the good thing was he seems to be fighting full blown hypsarrhythmia. Landon has now been started on intense steroids for the next two weeks to hopefully help him become seizure free? We will again return to Philly to see how his EEG looks at that point. He had a few good days after we started the steroids, but today he has had two seizures. The doctor said Landon isn't the typical Infantile Spasm child...he is very active, which isn't the norm. The doc seemed extremely optomistic, and of course couldn't give us much information on what to expect. Each child will write their own story. All 3 of us had blood drawn to become part of a study to see if they can finally find some answers to why children have infantile spasms. Wouldn't that be nice?

We did have some fun on our way to Philly. We stopped at the Hershey factory and Bass Pro Shop! It was fun, but a very long 2 days, considering we were in the car 6 hours each way! It's a long trip, but we are finally getting some answers! Landon is such a trooper when we go, he just watching dvd's.

Thinking and praying for everyone! Hope all is well!

XOXO,
Heather