So Landon has decided tonight that sleep is over rated, and he doesn't want any! Ugh, I hate losing sleep! And none tomorrow since we see the GI specialist in Pittsburgh. I'm really anxious to see what he thinks is going on. I'm always nervous to get a new doctor and be disappointed. I'm sure you know what I mean...the doctor who acts as though you have no idea, won't let you get a question in, and makes you feel crazy. I feel awful after appointments like that, and right now I would most likely have a nervous breakdown if that were the case. I have so many thoughts, and am worried to hear anything negative!
Things have been extremely stressful since we started the diet over 8 weeks ago. I think it would be stressful by itself...but add the feeding tube, daily vomiting, numerous bm explosions a day, and extra phone calls and appointments. I don't want to give up on the diet, but it seems hopeless at this point. Especially since we are forcing it so much. How long did everyone else wait before they saw any result? I feel like at this point we would have seen a slight improvement. I'm trying to upload a video of some new odd movements...I'm worried it's a new seizure.
Hopefully I have time and energy to update later on what the GI doctor says! Praying as always!
Xoxo,
Heather
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