Wednesday, January 12, 2011

Goodbye Keto Diet

Landon is now down to a 3:1 ratio, and is eating his food again!!! Yahhhh! I'm hoping this is good news that he may start drinking as soon as he comes off the diet completely! He will be down to a 2:1 ratio Saturday, so say an extra prayer that he starts drinking again! I can remember wanting to start the diet, because it was going to be our miracle. Now all I want is to run, as far away from the diet and as fast as we can! Things have always been tough in our house. From the daily seizures, and struggling with Landon to be a normal baby. But God decided to make me realize how Lucky we were when we started the diet. Things are crazy and hectic with the diet, under normal circumstances, but throw in a feeding tube and refusal to eat...and it gets overly crazy! I hope things return to our "normal" asap! We had to try the diet, and wouldn't change it, but I'm not sad to say goodbye!

Leaving the diet means more drugs. Landon will soon be back in Philly and we will be starting Felbamate...if you know anything about it, it's scary. Unfortunately, we have to try it. So we will say more prayers than now, and pray Landon doesn't have any of the awful life threatening side effects. He is still having about a seizure a day. But he seems to be recovering quicker after them. He is continuing to make slow progress. He has been overall happy for the last few weeks, other than some teething issues.

We are thinking and praying for all of our friends!

Xoxo,
Heather

2 comments:

  1. Stinks that the Keto diet didnt work!!! I know you guys were counting on that.. Hang in there, know were praying for you!!

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  2. Hang in there. A special prayer is definitely his way.

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